This project was suggested by Maria. Instead of paraphrasing, I’ll just copy and paste what she had to say: Hi Julia! It’s wonderful to see an option for us right-brained types to explore the creativity that lupus can inspire in us. We are often so overwhelmed with the left-brained, techinical and structural things that managing… Continue Reading
The following essay was submitted by Stephanie as part of the Share Your Story project. To view other projects submitted by Stephanie, click here. I don’t have lupus, and have never met anyone face-to-face “IRL” who does. But since learning about the disease, I’ve begun to take awareness of it very personally. I don’t know… Continue Reading
The following story was submitted by Sandy Lavender as part of the Share Your Story project. It Was Not My Precious 18 Year Old Daughter Ashley That Was of Supposed To Die, It’s Me I have Lupus I will never forget going to my Internal medicine doctor in June 2000 and telling her I felt… Continue Reading
The following story was submitted by Lisa Martens as part of the Share Your Story project. To view all projects submitted by Lisa, click here. The way this story is told is a bit different. It is told through art. Normally, I would place any “about” information below the submitted art. However, this time both… Continue Reading
The following is a gift for all of those who suffer from Lupus and for those who want to learn more about the different challenges a Lupus sufferer face. I created this as part of the Share Your Story project. To view more projects submitted by me, click here. Tales of a Lupus Butterfly For… Continue Reading
The following story and accompanying photo was submitted by Geoff Thomas as part of the Share Your Story project. Backstory: In 2007, Geoff bicycled across the USA to raise Lupus awareness. 156 days and 14514.045 km (9018.61 miles) later, on September 30, 2007, he finished that journey in New York, NY. Find his original cycling… Continue Reading
The following essay was submitted by Laureen Copeland as part of the Share Your Story project. To view more projects submitted by Laureen, click here. My Lupus Story I got into online investing, because of Lupus and being on disability. I felt had to keep my mind busy to distract me from the pain. Little… Continue Reading
The following essay was submitted by Kevin Savino-Riker as part of the Share Your Story project. To view more projects submitted by Kevin, click here. An Essay I’m sorta cheating on this project. I don’t know anybody who suffers from Lupus. That’s to be expected, I guess, with a disease so rare. That it gets any… Continue Reading
As I was preparing for this project, people who were wanting to do something for it asked me questions about Lupus and how it affected me. This is not an easy question to answer. This project just so happens to coincide with a flare. I felt it important to answer these questions. After all, this… Continue Reading
The following story I wrote last July after reading an article on Benlysta, a drug currently undergoing testing for the treatment of Lupus. I thought it appropriate to leave it here as part of the Share Your Story project. To view more projects submitted by me, click here. Putting A Face To Lupus – The… Continue Reading
This idea came from Russ Rogers after he read my crazy idea for World Lupus Day on my personal blog. I will take excerpts from an email he sent out to graphic artists explaining his idea: Last year, Lucy Vodden passed away at the age of 46 after a long battle with the autoimmune disorder Lupus.… Continue Reading
Everyone affected by Lupus has a story. All of our stories share some basic elements but as Lupus does not affect two people the same, our stories are vary. Whether you are a Lupus sufferer or know someone who is, I invite everyone to share their story. The more people share their stories, the more… Continue Reading