A Virtual Gallery To Bring Awareness To Lupus

Category Archives: Stories

Incognito No More

Incognito No More

This project was suggested by Maria. Instead of paraphrasing, I’ll just copy and paste what she had to say: Hi Julia! It’s wonderful to see an option for us right-brained types to explore the creativity that lupus can inspire in us. We are often so overwhelmed with the left-brained, techinical and structural things that managingContinue Reading

Raising Awareness. An Essay by Stephanie

Raising Awareness. An Essay by Stephanie

The following essay was submitted by Stephanie as part of the Share Your Story project. To view other projects submitted by Stephanie, click here. I don’t have lupus, and have never met anyone face-to-face “IRL” who does. But since learning about the disease, I’ve begun to take awareness of it very personally. I don’t knowContinue Reading

My Story With Having Lupus by Sandy Lavender

My Story With Having Lupus by Sandy Lavender

The following story was submitted by Sandy Lavender as part of the Share Your Story project. It Was Not My Precious 18 Year Old Daughter Ashley That Was of Supposed To Die, It’s Me I have Lupus I will never forget going to my Internal medicine doctor in June 2000 and telling her I feltContinue Reading

The Story Of Lupus Through Healthy Art by Lisa Martens

The Story Of Lupus Through Healthy Art by Lisa Martens

The following story was submitted by Lisa Martens as part of the Share Your Story project. To view all projects submitted by Lisa, click here. The way this story is told is a bit different. It is told through art. Normally, I would place any “about” information below the submitted art. However, this time bothContinue Reading

Tales Of A Lupus Butterfly by Jules Sherred

Tales Of A Lupus Butterfly by Jules Sherred

The following is a gift for all of those who suffer from Lupus and for those who want to learn more about the different challenges a Lupus sufferer face. I created this as part of the Share Your Story project. To view more projects submitted by me, click here. Tales of a Lupus Butterfly ForContinue Reading

The Great Divide by Geoff Thomas

The Great Divide by Geoff Thomas

The following story and accompanying photo was submitted by Geoff Thomas as part of the Share Your Story project. Backstory: In 2007, Geoff bicycled across the USA to raise Lupus awareness. 156 days and 14514.045 km (9018.61 miles) later, on September 30, 2007, he finished that journey in New York, NY. Find his original cyclingContinue Reading

My Lupus Story by Laureen Copeland

My Lupus Story by Laureen Copeland

The following essay was submitted by Laureen Copeland as part of the Share Your Story project. To view more projects submitted by Laureen, click here. My Lupus Story I got into online investing, because of Lupus and being on disability.  I felt had to keep my mind busy to distract me from the pain.  LittleContinue Reading

An Essay by Kevin Savino-Riker

An Essay by Kevin Savino-Riker

The following essay was submitted by Kevin Savino-Riker as part of the Share Your Story project. To view more projects submitted by Kevin, click here. An Essay I’m sorta cheating on this project. I don’t know anybody who suffers from Lupus. That’s to be expected, I guess, with a disease so rare. That it gets anyContinue Reading

Living With Lupus – A Podcast by Jules Sherred

Living With Lupus – A Podcast by Jules Sherred

As I was preparing for this project, people who were wanting to do something for it asked me questions about Lupus and how it affected me. This is not an easy question to answer. This project just so happens to coincide with a flare. I felt it important to answer these questions. After all, thisContinue Reading

Putting A Face To Lupus – The Elephant In The Room by Jules Sherred

Putting A Face To Lupus – The Elephant In The Room by Jules Sherred

The following story I wrote last July after reading an article on Benlysta, a drug currently undergoing testing for the treatment of Lupus. I thought it appropriate to leave it here as part of the Share Your Story project. To view more projects submitted by me, click here. Putting A Face To Lupus – TheContinue Reading