Author Archives:

Incognito No More

Incognito No More

This project was suggested by Maria. Instead of paraphrasing, I’ll just copy and paste what she had to say: Hi Julia! It’s wonderful to see an option for us right-brained types to explore the creativity that lupus can inspire in us. We are often so overwhelmed with the left-brained, techinical and structural things that managing… Continue Reading

Kevin Savino-Riker – Better Days

Kevin Savino-Riker – Better Days

  This song is written and performed by Kevin Savino-Riker as part of the Create a Song project. You can listen to the song above and read the lyrics below. To download this song for free, right click and save as. To view other projects submitted by Kevin, click here. BETTER DAYS The best thing… Continue Reading

Silver Dreams by Heather Miller

Silver Dreams by Heather Miller

The above image entitled, “Silver Dreams”, was submitted by Heather Miller and for the Butterfly Kisses project. Here are Heather’s words about this image: It has only been this year that I have come to know anything about Lupus other than repeated references in the TV show House.  Learning about how devastating it is, hearing… Continue Reading

Filed Under: Art
Lupus Kite by Carson Upton and Kathryn Slater

Lupus Kite by Carson Upton and Kathryn Slater

The following was submitted by Carson Upton and Kathryn Slater for the Butterfly Kisses project. They wanted to build a kite, out of biodegradable materials, with the Lupus butterfly on it. The original plan also included flying it, unfortunately the weather did not cooperate. To view more submission by Carson, click here. Click the thumbnails… Continue Reading

Raising Awareness. An Essay by Stephanie

Raising Awareness. An Essay by Stephanie

The following essay was submitted by Stephanie as part of the Share Your Story project. To view other projects submitted by Stephanie, click here. I don’t have lupus, and have never met anyone face-to-face “IRL” who does. But since learning about the disease, I’ve begun to take awareness of it very personally. I don’t know… Continue Reading

Butterfly Kisses by Ermelinda Cortes

Butterfly Kisses by Ermelinda Cortes

Below you will find pictures of embroidered butterflies on pillowcases submitted by Ermelinda Cortes for the Butterfly Kisses project. Ermelinda is donating these pillowcases to a Lupus organization in her area, where they will be given to a Lupus patient. Click the thumbnails to view images in full. Continue Reading

Jules Ruddick – When

Jules Ruddick – When

  This song is written and performed by Jules Ruddick and submitted as part of the Create a Song project. I would like to share with you a portion of the email sent with his song submission: Wrote this earlier this year on piano & then just played around with it in my studio. Was… Continue Reading